Little Reagan will have her transplant today. Please keep her in your prayers.
Little Raegan needs your help. She is the little girl who we've been trying to help survive a huge challenge to live. Please read her Mom and Dad's plea to find a donor. The link below is to little Raegan's website and a short video of her. Please visit the website for more details. Your prayers are much needed and appreciated.
Below is the letter that we are mailing, emailing, etc to everyone we know in an effort to find Raegan a new donor. I hope that you will take the time to read it. I just took a minute to update Raegan's pictures and also post a quick video of our giggley girl. It should warm any heart.
http://www.onetruemedia.com/otm_site/view_shared?p=511b7a786e15e9b7c2b72f&skin_id=601&utm_source=otm&utm_medium=email
This letter is being sent on behalf of our daughter, Raegan Milan and on behalf of our entire family with regards to Raegan’s need for a kidney transplant.
Raegan was born on January 29, 2007 in Raleigh, North Carolina. Due to severe oxygen deprivation at birth Raegan’s kidneys lost their ability to function. Raegan began receiving peritoneal dialysis in August of 2007. Due to complications with this form of dialysis we were forced to pack up our lives and transfer Raegan to the University of Minnesota Children’s Hospital. This hospital is one of the few hospitals in the country that can do hemodialysis on babies and it also has one of the best transplant programs in the world. We moved to Minnesota the week before Christmas of 2007. Raegan had a hemodialysis catheter placed within a couple of weeks and has been receiving hemodialysis five days a week for four hours a day.
Since beginning hemodialysis Raegan’s health and strength have improved exponentially. She is growing, eating, “talking”, rolling and all around developing although she remains severely delayed. Her health finally improved enough to allow us to take her “home” with us for the first time since she was born. We are currently living in a small rental apartment in Minneapolis and really enjoying our time together as a family. With her health improving we felt like we were finally getting close to a transplant. I (her mother) had planned to be Raegan’s donor and we were quickly moving forward with the testing. On February 18 we received the devastating news that I cannot donate to Raegan because of a large number of kidney stones in my own kidneys. Raegan’s father has a different blood type so he is also not able to donate.
Raegan urgently needs to locate a living kidney donor. Being in end stage renal failure severely delays Raegan’s ability to develop and hit milestones that are so important to her future. She is dependent on the function of a catheter that was placed in her chest. We constantly worry about it getting tugged on, infected or losing function. The hospitals local to our home do not do hemodialysis on babies her size so we are living 2000 miles from home until she can be transplanted.
We do not wish to put pressure on anyone to make such a donation or to personally respond to this request. We DO want to make the need known to as many people as possible in the hope that someone will feel a special call to help. Please spread the word and pass this on to your friends and family. If there is more than one potential donor who responds, either directly to ourselves or to Raegan's transplant coordinator, the hospital will do tests on each of them in an effort to find the one who is most suitable. All cost associated with the evaluation process and the transplant surgery is covered with no cost to the donor.
We know that what we are asking for is a huge commitment for anyone to undertake. We accept that many people would find it too much to even consider. If you should consider donating, we know that you would want to find out as much information as possible. Attached to this letter is a list of frequently asked questions and information on how to begin the donor evaluation process.
We deeply appreciate your consideration, your prayers and your good wishes in this matter of grave concern to Raegan and to our family.
Sincerely,
Michael and Layne Lombardi
Temporary Address:
3150 Excelsior Blvd.
Apt.212
Minneapolis, Minnesota 55416
Permanent address:
5801 Raddington Street
Raleigh, North Carolina 27613
Layne’s Cell – (919) 280-6381 / Email: LayneT2@yahoo.com
Michael’s Cell – (919) 368-4340 / Email: mike.lombardi@andrew.com
Raegan’s website: www.caringbridge.org/visit/babyraegan
To begin the Donor Evaluation Process:
- Donors must be between the ages of 18 and 50 and have type “O” blood. (the positive or negative is not important)
- If you fit the above criteria please contact Cathy Garvey (Raegan’s transplant coordinator). Any information you discuss with her is strictly confidential.
University of Minnesota Medical Center Transplant Center
Cathy Garvey, RN, BA, CCTC
Transplant Coordinator
(800) 328-5465 Ext. 582
Please email if you would like to view the FAQs